WEIRD – or Weird Consequences of a Bedbug Incident, by Regine Dubono is intended to help struggling families see things from a fresh perspective.
Desiree, the focal character in the story, suffers from several disabilities and regularly undergoes treatments for many of them, including mental illness, physical disabilities, and many others. Despite her many conditions, however, she was also highly talented in many ways.
Regine Dubono calls into question the modern psychiatric practice of creating within people a sense of weakness which should therefore be treated with any number of serious and life-altering psychiatric drugs.
The author brings a lot of things to focus through her story, but one of the most powerful is the fact that there is serious repercussions that come from taking these types of medications. Most notably, feelings of being helpless and dependent on the prescribed cocktail of pharmaceuticals. Even more, though, how damaging the wrong drugs can be for a person.
In fact, Desiree suffered the unfortunate fate of being experimented on through pharmaceutical trials on more than one occasion, ending up in states that seemed utterly hopeless, prompting ‘professional opinion’ to recommend Desiree to permanent hospitalization. It was only when she was allowed to stay clear from the drugs and given the personal agency to operate certain aspects of her life that she showed any real signs of improvement and comfort.
The moral of the story is clear and a much needed one at that. Parents, as well as anyone else acting as caretaker for a disabled person, should keep a close eye on the treatment programs and medications that are often administered. Are they doing more harm than good? Are they helping at all? Whatever the case may be, the author’s mission in writing this diary of events outlining Desiree’s life and experiences is to provide anecdotal evidence. The evidence suggests, among other things, that entrusting medical professionals to decisions related to the best interests of the patient is not always the best approach.
In terms of accessibility and style, the majority of Weird – or Weird Consequences of a Bedbug Incident is provided in diary form. As such, it reads as more of a collection of personal notes as opposed to being a dramatized novel. The situations are genuine. The times and places are all accurate. And the notes offered for all the various situations the author faced are about as eye opening as anything else in this category. This is certainly a unique work that deserves attention.
Pages: 220 | ASIN: 1329529731
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Caring as a Carer is the true story of George and Jenny Mailath and their battle with Jenny’s condition; MSA (Mulitple system atrophy). This book is sort of a mix between the personal story of this couple and a guidebook for those who are suffering from or caring for someone with MSA.
I absolutely love the way this book was written. In the beginning the author (George Mailath) stated that he didn’t want the book to come across as simply a guidebook or a text book. He did an amazing job of accomplishing his goal of writing a heartfelt story that contains a set of recommendations for caring for someone with MSA. I wasn’t familiar with this particular disease before reading the book, but anyone who knows anything about chronic debilitating illness knows that it doesn’t only affect the victim, but their loved ones as well. George was able to expertly convey how his wife’s condition affected his own emotional and mental state, from his desire to be truly empathetic to his feelings of guilt for not being as understanding as he should have been in the beginning. This is, of course, something that can only really be recognized in hindsight, which is part of what makes the story invaluable to readers who may be caring for someone with this illness.
I love how George gives us a brief yet detailed enough background of he and his wife’s relationship and life before being affected by MSA. It perfectly illustrates for the reader how drastically their lives were changed and the effect this change had on their emotional and physical well-being. The chapters are laid out very well, with each one having a specific intention such as “empathy”, “rehabilitation sessions”, and “facing up to reality”. The really unique aspect though, is that while these chapter titles appear to be similar to a text book format, they are filled with as many touching moments of real life as they are of recommendations for treatment. I’ve really never encountered a book with such a great balance in this area before.
George’s love for his wife is so evident throughout the book that I found myself almost brought to tears at times. However, his attitude towards her illness is also incredibly refreshing in that he simultaneously remains calm and calculated in his actions and assessments of the situation without sacrificing empathy, understanding and love. It was really an absolutely beautiful book to read. I don’t have anyone in my life suffering from a debilitating illness and I still greatly enjoyed reading it. In fact, I think it’s really superb in that the book will be beneficial to anyone caring for someone with any such disease, not necessarily just MSA. While it is certainly tailored to people dealing with MSA, the principles of care and love that George expresses can be applied to any similar scenario. I absolutely recommend this book to others and sincerely hope that it circulates widely enough to have the profound effect on caring and carers that I feel it can have.
Pages: 116 | ISBN: 1483448584
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Spinner is a refreshing addition to the science fiction and horror genres. The book gives readers a new perspective as the main characters are not your usual shiny protagonists, but rather a group of boys, all of whom have some form of disability or handicap. The main character, Alex, is both impaired mentally as well as physically, bound to a wheelchair. This is not the only thing that sets Alex apart, though. Alex is a spinner, capable of taking on others emotions, physical ailments, and pains before they disappear entirely. A trait that finds him unknowingly being watched by those with ulterior motives and a far more sinister entity as well.
Spinner definitely brings something new and refreshing to the table with its focal characters being those typically dismissed and often belittled in our society. Bring in the science -fiction/horror vibe and Michael J. Bowler definitely writes to catch your interest. The story is original and cut from a different cloth which is refreshing. Although sometimes sentences can run on or become focused on small details, almost Charles Dickens-esque. It leaves little to the imagination as each character and scene is described in detail.
The author does a wonderful job of presenting the main characters with disabilities as people, not just a subset of society to be catered to. Each character, though their disabilities are mentioned and made apparent through their interactions, are easily seen as teenagers with their own opinions, personalities, and mindsets. The fact that they’re disabled rarely comes to mind throughout unless the story itself points to it, giving a refreshing and normalized perspective. Bowler uses a lot of different aspects and mannerisms stereotypical of a screen-teen. There are many dramatizations and immature reactions that detract from the characters otherwise superb development and depth.
I found this contemporary story easy to relate to and understand. Spinner has a lot of interesting and refreshing concepts that I felt kept the story thrilling and suspenseful.
Pages: 445 | ASIN: B075VCQ5F9
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