I’d Rather Be Dead Than Deaf is the journal of a teenager’s life before a devastating diagnosis leading up to her treatment for liver cancer. Why was it important for you to share your sister’s experience with readers?

While there are many published books about cancer, there isn’t a single story about liver cancer from a teenager who did not survive the disease. My sister Adrienne always wanted to educate people about her cancer and publishing her journals, poetry, and artwork was the best way to do it. Also, all the proceeds benefit Blue Faery: The Adrienne Wilson Liver Cancer Association, a national nonprofit organization that I founded in memory of Adrienne.

Adrienne’s journal is quite gripping in its honesty. What was the most difficult part of putting her writing and artwork together for publication?

Well, Adrienne was a notoriously bad speller, so correcting her mistakes was time-consuming. But seriously, the hardest part was going through her artwork and being reminded of how talented she was. The world missed out on an amazing, funny, creative young woman. I don’t know if she would have become a professional artist because she had so many interests and gifts, but her talent is undeniable.

How has sharing your sister’s journey impacted your life?

From the moment she came to live with me, Adrienne gave my life purpose and meaning. She continues to do so beyond her death. I feel like I raised the best kid ever and I’m glad her story is helping others with the devastating disease that ended her life far too young.

What is one thing you hope readers can take away from I’d Rather Be Dead Than Deaf?

Live life on your own terms and enjoy every freaking minute of it.

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