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A Diagnosis Doesn’t Define

Author Interview
Ezra Negassi Author Interview

Johnny and Type 1 is a heartfelt and empowering children’s book that follows a young boy’s journey from confusion to confidence after being diagnosed with Type 1 diabetes. What was the inspiration for the setup of your story?

Johnny and Type 1 is deeply personal—it was inspired by my son Azariah, who was diagnosed with Type 1 diabetes at just 2 years old. Watching him navigate the early days of his diagnosis—filled with confusion, discomfort, and questions—moved me profoundly. I wanted to create something that would help him, and others like him, feel seen and empowered. I co-wrote the book with my eldest son, Isaiah, making it not just a story about our family, but a story from our family.

What message did you most hope children living with chronic conditions would take away from Johnny’s story?

The core message I want children to take away is that with the right mindset and a strong support system, they can live boldly and joyfully even with a chronic condition. A diagnosis doesn’t define them. What defines them is their courage, their resilience, and the love surrounding them. Johnny’s story is a reminder that they are not alone, and that strength comes in many forms even the quiet, everyday kind.

How did you collaborate on the storytelling and illustrations to ensure Johnny’s emotions felt authentic and relatable?

Working with Scott, our illustrator, was a great experience. He has a unique ability to bring emotion to life through art. From the beginning, he took the time to deeply understand our story and connect with the character.

What is the next book that you are working on, and when will it be available?

At the moment, I don’t have another book in the works. My first book, Adventures of the Negassi Brothers, was written for my boys, and Johnny and Type 1 was written about my son’s journey. I tend to write when I’m deeply inspired, when a story feels meaningful and worth sharing. My goal is always to encourage others through authentic, heartfelt storytelling. So while I can’t say exactly what’s next, I know that when the time comes, the next story will find its way to me.

Author Links: GoodReads | Amazon

After Johnny is diagnosed with type 1 diabetes, he thinks his life is over. Everything seems so hard and scary. But with some help from his family and a bit of encouragement from his new friends and classmates, he has all the tools he needs to manage diabetes and learn to live with it.

With this fun and educative rhyming story, young readers will learn all about living with type 1 diabetes. Whether it’s them, or a loved one, who is diagnosed with the condition, they will know that it’s not a burden, but a superpower.