In Seeking Clarity in the Labyrinth: A Daughter’s Journey Through Alzheimer’s, you share your family’s experiences following your mother’s Alzheimer’s diagnosis, how you navigated her care, and the grief of losing her to this disease. Why was this an important book for you to share?

When it was clear we were well into our journey with Alzheimer’s, and my Uncle and Aunt passed (complications with Parkinson’s & Alzheimer’s) I started writing to heal myself. As I shared it with my Dad, it became clear our story may be able to help others. The journey of losing a loved one includes so many emotions–fear, anger, pain, sadness, love, grief. My hope is our story can help others in their journey.

I appreciated the candid nature with which you told your family’s story. What was the hardest thing for you to write about?

Much of the story was written in relatively ‘real-time.’ As I read it now, I am not sure if I would have been able to capture some of the raw, intense quality of my writing. Her passing ended up being this beautiful gift for both myself and my dad. If I went back and wrote it now, I do not know if it would have translated. This, however, was not the hardest part–those sections in the middle, when I was angry with her and the situation…those parts were hard to write about.

What is a common misconception you feel people have about caring for a family member suffering from Alzheimer’s?

Too often we believe we have ‘lost’ our loved ones. Yes, in many ways they are lost or ‘gone’ but, truly, we have just lost a version of them. Their essence is still there. They may not talk or walk, and often our loved ones may be angry or even nasty, but they are still human. They are still our people. If we are able to remember that, remember them in their entirety, we can help care for them more easily. If we can meet our loved ones where they are, we are truly seeing them.

What is one thing you hope your readers take away from your experience?

I hope my readers laugh, cry and embrace the sweet and fragile joy of life, in its raw, sometimes nasty and tragic ways. Life is beautiful, in all the ways we are able to see it.

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