Dementia Man is your memoir, sharing your story of cognitive decline, receiving the diagnosis of early-stage Alzheimer’s, and your blunt observations on a broken medical system and call for change. Why was it important for you to share your story?   

I wanted to share an authentic voice—I do have Alzheimer’s—that can help others imagine living a meaningful life with this disease. Some voices and organizations promote suicide. Many individuals lose heart and fold into themselves. I want to be a model of what might be possible, defy stereotypes, and encourage us all to strive to help find a cure to this disease. Maybe, just maybe, there is something about any one of us with a diagnosis that might help find the cure just a little sooner!

What were some ideas that were important for you to share in this book?

First, if there is anyone in your family history who has had Alzheimer’s, you should find out whether you carry a genetic marker called ApoE4. It increases your risk, and finding out early allows you to pursue medications and lifestyle changes that can help.

Second, be careful. Frauds and scams abound around this disease. There is no cure. Hard stop. Many excellent U.S. government and state government resources are available on safe, effective approaches to slowing decline and getting help.

Third, I provide a list of a growing number of patient-led organizations that offer support, community, and guidance to help you and your family navigate this stage of life with dignity, purpose—and yes, even some joy.

What was the most challenging part of writing your memoir, and what was the most rewarding? 

So many challenges… it’s hard to pick. Yes, the challenge of memory impairment and writing means I need some help, and I use a writing coach. It is frustrating. There is also the emotional impact of imagining the late stages. The most rewarding thing is the impact it has had on others and on myself. The responses shared with me by readers are humbling—not about my writing, but about insights gained and the hope instilled as they, or a family member, move forward.

What is one thing that you hope readers take away from Dementia Man: An Existential Journey: Choosing Life and Finding Meaning with Alzheimer’s?

The one thing is that it is possible to engage with purpose, love, and joy in life with this disease. You are NOT alone; there is a world out there of help and support. You can become the best version of yourself with Alzheimer’s that the world has ever seen. I have tried to include many resources—things I didn’t even know existed—that are available almost everywhere. Just one small example: I didn’t know that 211 existed, a phone number people can call to locate essential community services.

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