Jackdaw Affliction follows Billy from a rough-edged 1980s English childhood into adulthood, where grief, love, and the advancing grip of ataxia turn survival, dignity, and endurance into the heart of the story. What drew you to tell Billy’s story across such a long emotional and physical arc?

My desire in writing this novel was to keep things real and plausible. I have lived experience of Ataxia and strong connections with peers across a wide range of disabilities. To stay truthful to what many folk experience, it was necessary to have an arc where Billy loses everything. Or at least perceives he loses everything.

The beginning of the novel – Youth – is about the growth and making of the man. The second half of the novel is about diminishing abilities and the effects on the mind. The frightening thing about ataxia and all degenerative conditions is that they slowly chip away at you until there is nothing left. Often, the mental health side of this is not explicitly discussed. I wanted to change that.

How did you balance the intimacy of Billy’s voice with the wider family-saga feel of the novel?

I wrote this book with the aim of raising awareness of a rare condition. But also, I wanted to give readers an insight into the mind of someone who slowly loses all that made them who they are. Mental health is a real and delicate thing. It is for me, and it is for many people with debilitating conditions.

The book was always about Billy’s story. Always predominantly his narration. After my first draft, it became apparent that I needed more structure and readability. This is when the vignettes from his family members came in. Both to tell the story from other perspectives, but also to offer some unquestionable truth and reliability to the manuscript. The family was always a vital cog in Billy’s wider story, even when they were no longer present in his life.

Music feels like a quiet current running through the book. What role did it play for you while writing?

Music helps set the theme, feel, and time stamp this story. Almost by chance, I had found myself listening to certain tracks whilst writing and developing the book. Each track helped me set the scenes and characters to a specific point in time. Whilst not a historical novel, it is set over 35 years, so being accurate on the recent past was a necessity.

Also, if you pay really close attention to each song in the book, you can almost see a story told by the track listings.

As important as music is, it was also important to have an absence of music during Billy’s darker times. For this reason, almost all of part 4 is devoid of music.

When writing Billy’s experience of ataxia, how did you approach portraying disability, humiliation, and endurance without slipping into sentimentality?

The aim from the outset was to portray a plausible, real character. Inspiration porn was not the goal. By this I mean it was important that all characters made mistakes, had flaws, and had mischievous thoughts, rather than paint them as some kind of saint or martyr. Hopefully, the book balances vulnerability with agency. The idea was not to have characters as symbols or lessons, but to present flawed, authentic human beings. As mentioned, it was great to draw on my experiences and those of my peers to keep the story feeling as genuine as possible.

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