The Mom and Her Autistic Daughter details the life and hardships you encountered when caring for an autistic adult daughter. Why was this an important book for you to write?
I wanted so much to help her because the child I remembered she was was very smart, very gifted in the arts (dance, music, painting), so sensitive to your feelings, so compassionate. The drugs had turned her into a disabled monster.
There is ample discussion given to the drugs that autistic people are often prescribed. What are some common misconceptions people have about this topic?
The drugs only serve to mask symptoms and give the false impression that they are solving the problem.
Do you plan to write more books on this topic?
Yes. I will continue this fight as long as I live. My next book may be titled: “After the Respite”.
Desiree has been given a status of emergency placement and Terry is her designated ICM. Attempts to place Desiree in a DDD licensed supervised apartment are tedious and difficult for she has e-bursts and night incontinence. Her issues are personal anger, and high anxiety. And perhaps because she was prescribed anti-depressant drugs, she can become violent. Unlike parents of mentally ill young people, Dubono pulled Desiree out of the shelter in an attempt to heal her, while awaiting the DDD placement.
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The Mom and Her Autistic Daughter by Regine Dubono is a fitting title for this book. Dubono explains the life and turmoil of Desiree, an adult with autism, and her mother. Desiree’s medicines’ effects and side effects are explored. The struggle to find Desiree a long term living arrangement becomes a source of contention between Desiree, Desiree’s mother, and her caregivers. Her mother finds it difficult to find balance for herself and her daughter while playing a deck that seems stacked against them.
The author delves into Desiree’s everyday life which feels tumultuous at best. Desiree has parts of her life she enjoys such as shopping and manicures, but everything apart from that feels tense. In working in Special Education I have found in the past that this is pretty typical of autistic children. I assume that would generally carry over into adulthood as it has with Desiree. My students have had areas they excel in and become almost obsessive about their particular interests. Anything else feels boring or daunting. Any deviation from their schedule can also cause a tailspin or meltdown. These are things that readers who have not worked with people with autism may not know and may learn from the book.
I’ve also had a bit of experience in dealing with drugs and their side effects while caring for my father. Dubono explores how drugs may “fix” one issue, but cause many more. One drug may also cause further symptoms that need to be controlled, thus producing the need for more drugs. These are frustrating waters to navigate. Readers may get more of a grasp of how many pharmaceutical companies and drug-pushing doctors work in this aspect. This part of the book is especially pertinent in today’s social climate.
Dubono’s explanation of the struggles in finding Desiree a permanent and sufficient placement especially hit home for me. Many readers who have dealt with this kind of thing will be able to sympathize with the accounts she gives. It is extremely hard to find caregivers for adults. It would be exponentially harder to find care for those who are prone to have outbursts and labelled as “difficult.” Clean and suitable facilities and genuinely caring and qualified caregivers aren’t always readily available. My family knows that from experience. Anyone who has dealt with this will find her accounts relatable.
The structure of the book feels somewhat lacking and feels repetitive at times. One letter in particular that is written by the mother is repeated almost verbatim in another part of the book. I had to flip back to make sure I hadn’t lost my place. There are quite a few grammatical and spelling errors throughout the book. There are also many abbreviations that are left unexplained. There is substance in the experiences and relationship of the mother and daughter, but the book doesn’t flow as well as I would have liked it to. I think the book would benefit greatly from an editor and proofreader.
There are important lessons to be learned here. This is a story that should be told as a cautionary tale and to help parents or guardians not feel alone in this situation. Desiree’s voice should be heard, I just think the book could use some revision and restructuring.
Pages: 123 | ASIN: B07H5RCYB5
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A true story about a mom who decides to help her autistic daughter live a normal life, took her out of shelter and into her own home. Parents of disabled children are passionate about their love for them and their love carries into adulhood. Soon, she discovered that her daughter, after over 30 years of psychiatric treatment, 17 of them in a group home, still displayed her original symptoms only exacerbated. She started reading Thomas Zachs and Peter Breggin, and learned about the design of psychiatric drugs as instruments to get rid of undesirable populations. When her daughter refused all the drugs however she caused her symptoms to rebound, and the mom now learned about how tragic it is to even start on a psychiatric drug. Only a very slow withdrwal under an MD supervision will avoid complete deterioration of brain and body, and avoic behavior problems such as outbursts and violence.
Order a Book at https://regine-du-bono.com/books/
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Imagine just having gotten back from vacation only to find out your best friend’s cousin has been murdered.
This is what greeted Lieutenant Beaudry, a renowned but controversial officer who isn’t particular in living by the police handbook. He is known to solve cases by his own rules. Will he make sure not to ruin it this time after his recent dispute? Or will he tamper the evidence just like his close friend Nico did after seeing his cousin motionless in his car.
Tainted Evidence by Michael Kent could seem like your typical murder novel except that in this story the professional assassin knows the art of prosthetics, perfectly disguising himself and surpassing immigration officers. He also makes his murders seem accidental. Nobody is suspicious until an officer was present in court when the judge suddenly lost consciousness, and later on, his life.
I liked the plot, as it stayed close enough to reality to be believable and there weren’t too many tangled lies and deceit to unravel. The descriptions of scenes are so detailed that even my imagination played it in my head with vivid clarity. Michael Kent is able to offer picture perfect scenes for his superb characters to inhabit.
My favorite character in Tainted Evidence has to be Pat. The book depicted her as an independent woman who successfully came out from an undesirable marriage. She had a struggle with her ex-husband but managed to break free, started over, recovered until becoming fully independent. I admired how she took charge of her own new life, not being discouraged by her
past, and being able to live alone and even choosing the house she and Beaudry would live in. She is a perfect epitome of a strong woman in this day and age. As fierce as her character seems, she did maintain her soft side by being as understanding as possible to Beaudry’s hectic schedule.
I also appreciated the inclusion of Jimmy, an autistic boy with exceptional photographic memory and drawing skills. I applaud the fact that his talent has been highlighted instead of his lack of social skills. I think this is a good example of Michael Kent writing, he always plays to a characters strengths.
Interesting characters and a fascinating murder mystery will give any fan of the mystery crime genre plenty to enjoy.
Pages: 220 | ISBN: 0993713165
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Upon Broken Wings follows teens Andrew and Kiernan as they journey to the afterlife where they must face the dark consequences of their actions. What was the inspiration behind this emotional novel?
Reedy – Our inspiration came from the unexpected loss of a family friend many years ago. My writing of the original rough draft/screenplay was a way to work through my own shattered feelings.
Later with the help of my co-author, a/k/a my sister, we rewrote the story as the novel Upon Broken Wings. Our greatest purpose we decided together was to save a life, any life, many lives. Hence the the theme of finding hope all around us.
Wade – All stories are the same in that we have our main characters attempt to achieve a goal and at the same time, it is up to us, the authors, to throw stones at them every step of the way. Being the parent of an autistic child, I included some of my own experiences into the creation of young Andrew, and as such we threw some pretty hefty stones.
Andrew and Kiernan struggle with their own demons while also trying to support one another. What were some themes you wanted to capture with their characters?
Reedy – Finding hope in the most desperate situations, learning to trust our loved one and ourselves.
Wade – Reaching out when we feel the most alone.
I find that the best books often have parts of the author in them. Did you insert anything from your own life into this book?
Reedy – I grew up during the 70s and 80s in a Catholic family, hiding who I really was from, well, every one. So I was Kiernan.
Wade – As I mentioned earlier, through me experiences as the mother of an autistic child, I was able to define Andrew.
What is the next book that you are working on and when will it be available?
Reedy & Wade – We’re actually working on a three book saga, involving modern day druids, ancient deities and demons, and we are sticking with young adults who must discover who they are while saving the world. Were hoping to release the first early next year.
Bound by a dark act of hate and despair, high school freshmen, Andrew and Kiernan, learn that their untimely deaths did not bring an end to their pain, but only began the suffering of those left behind. While his lost memories return, Andrew must master seemingly impossible feats, both spiritual and physical.
As a dark spirit stalks Kiernan through the borderlands of life and death, he must also face the pain his actions have caused his loved ones. To save both their souls, Andrew must convince Kiernan to return to life and open his eyes to the love and beauty which had always been there.
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