With Angel’s Wings is one mother’s raw and heart-wrenching account of her life with two daughters with special needs. I understand that this book was based on your life. What made you want to put your story into a novel?
I never meant to write a book. I wrote therapeutically through some tough times (which was helpful). Nurses and therapists who were in our home through those years read what I had written and strongly encouraged me to share our story. Well…all except for one physical therapist who said, “Be careful who you allow to read this; child protective services may be called.” That bit of advice certainly fed into any misgivings and concerns I had about publicizing our tale! After years of prompting, though, I took a deep breath, closed my eyes tight, and sent it out for the world to judge me to their hearts’ content. I’m glad I did. The most gratifying moment was when a mother of a toddler boy who has Wolf-Hirschorn Syndrome messaged me and said, “I happened to stumble upon your book. Before I read it, I thought there was no way anyone could possibly understand what I’m going through and how I’m feeling. After reading it, I went out and bought 3 more copies to hand out to my family members in the hopes that as they read about you they’ll better understand me.” That’s what it’s all about, right?
You describe every obstacle encountered as you come to terms with your daughters’ challenges. What was the hardest thing for you to write about?
Given the fact that I was writing therapeutically, I can’t say any part of our story was particularly difficult to write. Writing it down was what made things a bit easier. That being said, there are multiple parts that I still can’t read without crying (most of the marathon IV poke sessions, when Sarah [“Hannah” in the book] coded in my arms, when she got her I.O.’s…I could go on and on). The one section that I avoid reading whenever possible, and when I do have to read it, I feel physically ill, is the section about my “breakdown” (when I [apparently] threw the knife at my husband). There are so many things I would change if I had the ability to go back, knowing what I know now (not that I’d ever want to!). One of the biggest is the way I addressed my depression (or DIDN’T address, as the case often was). I now understand just how big a role depression (and PTSD) played in our story. I wish I had known more about it then, taken it more seriously…and cut myself a little more slack, which hopefully would have allowed me to relax a little more and address every other aspect of my life a little more successfully.
Hannah’s is diagnosed with Wolf-Hirschhorn syndrome. What are some misconceptions about this condition and how did you educate yourself on it?
Well, to have misconceptions, I suppose you’d have to have any concept at all. Not only had I never heard of the diagnosis, but very few people I’ve come across have ever heard of it, so finding out I was wrong in my thinking hasn’t really been a problem. Something I definitely understand now that I didn’t before is that within every genetic diagnosis there’s a spectrum – not all with the same diagnosis present the same picture. There are, for instance, individuals with Down Syndrome who you hardly recognize as having the disorder, who are quite independent, and those who are much more involved, who are completely dependent on the care of others. Wolf-Hirschorn Syndrome is no different. Some WHS kids are quite high functioning…Sarah is not; she’s at the lower end of the spectrum. I have to remind myself of that, sometimes, when I’m feeling guilty over burnout and other WHS moms are posting about what a JOY their son/daughter is in their lives (along with pictures of them going to prom or enjoying a trip to Disney World). Same diagnosis in no way equates to same experience.
Because there isn’t a ton written about WHS, a lot of what I’ve learned has come more recently, since the explosion of social media. This is the generation that specialists are looking to for data on growth charts and life expectancy. That means we don’t have information to look at, but we have a wealth of experiences shared by many families that offer some clues as to what to possibly expect or watch for.
This is an emotional book that, I felt, was honest. What do you hope readers take away from your story?
For the “general population” reader I hope to offer a “peek in the window” of a family living a life likely very different from their own. When the reader sees a medically fragile child on the street, maybe that child will be looked at with more admiration for his/her strength, rather than pity. Maybe if the reader comes across an autistic child, he/she will be a little more patient and a little less judgmental toward both the child and the parent, alike. It can also be just plain interesting to read about others facing challenges we aren’t. It’s the little details that make you say, “Oh yeah…I never even THOUGHT of that being an issue!”
For readers within the special needs community, I hope to offer hope that if I could find the light at the end of my tunnel, you can, too. I hope to offer companionship by way of admission to my own doubts, frustrations, struggles, and screw-ups. I hope that a fellow special needs parent will understand this book is me saying, “You are not alone. You are not wrong for the way you feel. This, too, shall pass. And you are stronger than you know. You can do this.”
With Angel’s Wings is the true story of Laura, a young wife and mother of a three-year-old daughter. Her husband, Kevin, a marine, is deployed overseas, leaving Laura to give birth to their second daughter and handle the two young children on her own.
Thirteen days after the birth of her youngest, the pediatrician detects a heart murmur. That leads to just the first of multiple diagnoses for both of her daughters, sending Laura on an unexpected and emotional journey into the world of parenting medically-fragile, special needs children.
Right when Laura fears she will break under the incredible pressure, she encounters the beauty of true love, in a most unexpected and unconventional way.
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The Mystical Qigong Handbook for Good Health details one of the pillars of Traditional Chinese Medicine. Why was this an important book for you to write?
I believe that in our global society we are no longer restricted to one mode of medical care; that we can share and learn from each other. Further, Qigong is an ancient practice that offers incredulous insight into the human body and how it functions. I have utmost respect for tradition and the ancients.
It was nice to find a book that covered a variety of questions average people have about Qigong. What is one question you always get asked about this topic?
Can Qigong cure every disease?
What do you hope readers take away from your book?
That they should know the dynamics of the human body and how much we are connected to the universe; that we are inseparable.
What is the next book that you are working on and when will it be available?
I am working on 100 paths to God, a compilation of published articles that I have written for the Gleaner company, one of the oldest media houses in the western hemisphere.
Qigong is one of the pillars of Traditional Chinese Medicine (TCM). It involves gentle hand movements, postures, controlled breathing and some visualization. Qigong is widely known to successfully treat a number serious illnesses, promote muscular-skeletal strength, increase circulation and promote overall wellness. The Mystical Qigong Handbook For Good Health offers simple but very effective exercises for all age groups.
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Glossolalia is a thrilling ride through the mind of a woman who is seemingly normal but her life slowly unfolds to reveal something bizarre. What was the inspiration that made you want to write this book?
I have a keen interest in mind control of individuals, and the way controlling each individual can effectively affect a large number of people. All my life I’ve studied in depth the methods that agencies such as the CIA has historically used, and they often have manipulated people’s interest in the occult. And that seems like a topic rich with dramatic fictional possibilities, especially for Psychological Suspense, in which gaslighting is such a common element.
I know I love that electric shudder I get when realize something is not what I thought it was, when I’m just starting to put the pieces together and it’s first making sense, grim as the truth may be. I wanted to give readers that entertainment as well.
Nancy, is like many women at first, but she suffers from narcolepsy and has an addiction to pills that she is trying to kick. How her character unfolds and develops is fascinating. What was your plan as you wrote Nancy’s character?
The only way she can explain her fugues at first is to believe she has narcolepsy, but when she discovers what she does during her periods of amnesia, she realizes her problem is something entirely different from that illness. Similarly, she thinks she’s addicted to the pills to keep hallucinations and delusions at bay, but once she manages to stop taking them, she realizes her visions have been actual memories.
My plan with her was to create an anti-hero who finds a way to redeem herself while staying true to the dubious skills she’s been taught all her life. And she gives readers a way to inhabit the sympathetic victim as well as to perhaps develop compassion for people who are compelled to commit violent acts. In a way, she stands for all of us, because everyone has fallen prey to disinformation at some point, and thus has been an unwilling promulgator of it. And all of us have some chance at heroically redeeming ourselves for that, though of course, I don’t promote violence in any way.
There are a lot of fantastic twists in this novel along with a variety of surprises that kept me turning pages. Did you plan the novel before you wrote or did the story develop organically?
I planned it out to make sure all the plot points, pinch points, act breaks and all were in proper order. However, as I wrote it, I got new ideas for twists that were great fun to conceive of. For example, Brandon the YouTube conspiracy journalist with gigantism wasn’t in the completed first draft. Just as much as I enjoy the shudder of realization, I love the feeling of coming up with new plot twists. It feels delightful.
Glossolalia is book one in the Agents of the Nevermind series. Where does book two, Remember to Recycle, take readers?
People who like Glossolalia will probably like Remember to Recycle because it falls within the same genre categories including Conspiracy Thriller and Political Thriller, and while book one focuses on how coups are created, book two focuses on how proxy wars are created. In both cases, the emphasis is on how intelligence agents deceive the public into going along with the terrible treatment of other countries for profit motive, while pretending it’s for humanitarian aid.
Glossolalia referenced our society’s history, particularly related to intelligence agencies, as a foundation for the series, as well as a pattern of coups that’s been recurring for a very long time; Remember to Recycle specifically addresses what’s happening right now. It goes into all the types of trafficking that go along with war, which is the secondary meaning of the title.
However, the first meaning of the title is more obvious, because a major character is Dave, a homeless man who survives by going through people’s recycling bins and selling the stuff, like all the other guys on the street. But he comes up with a brilliant plan. As in Glossolalia, there’s a darkly humorous aspect to it, and he provides a lot of that. He was really fun for me to write, especially as it’s first person present tense, while he describes his life moment by moment to the “character” he affectionately calls Mr. Interrogator. He’s got a hell of a personality. He likes to wear a wide variety of costumes that he keeps under the bridge, and fancies himself an actor of sorts. He idolizes the Rescuers, who are based on the White Helmets.
No one but her uncle would hire Nancy, considering her habit of snapping out of amnesiac fugues, wondering where she got her bruises and the scent of men’s cologne. When she sees a crime of poison in progress at the company, she chases the truck carrying away the chemical legally deemed too toxic to use or to dump. Her pursuit leads to a convoluted world of political intrigue, esoteric rituals and an arcane Elizabethan spy code, and assassinations she never imagined – though her imagination is what holds that world together.
This conspiracy novel introduces a young woman with an ambiguous past involving herself in a killer organization with one layer after another of her psyche. DARK, even possibly DISTURBING ROMANCE, is key to finding elusive authenticity.
The old cartoonish formula of good CIA VS bad guys no longer is fresh and relevant. Though through a fictionalized agency, the books in this series, like Barry Eisler’s spy thrillers, explore the shady side of the CIA secret psy-ops, covert experiments, illusions, coups, media theater, psychological warfare, and illicit methods of funding. The Agents of the Nevermind series dares to explore the edgiest controversies and the convoluted lives intelligence agents must endure as they create bizarre delusions for the world in order to hide the truth about their nation’s financial foundation.
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